Frequently Asked Questions About Scleroderma

Scleroderma is classified as an autoimmune disease. This means that a person's immune system works against itself.

How will my scleroderma be treated?

Scleroderma is a chronic illness that will not go away. However, it is manageable. Treatment can make you comfortable. It can help to control the disease and keep it from getting worse.

Why is it so important for me to take an active role in my care?

You have a chronic illness that won't go away. Depending on the severity of your Scleroderma you'll be seeing more and more specialists and need to get the most from each doctor.

Can I continue to work?

It's up to you. It depends on how you feel and how your symptoms affect your ability to perform your duties at work. Speak to your employer about any concerns you have and talk about how flexible working could benefit you both.

Can I carry on with life as normal?

While the symptoms can affect how you live your life, they don't have to rule it.

Is scleroderma contagious?

Scleroderma is not an infection and cannot be passed directly from one person to another like chicken pox or flu. Scleroderma is not contagious.

How will my disease progress?

People are affected by scleroderma in different ways. It can be difficult to predict how it will progress. Your type of scleroderma, your symptoms and how they progress can give an idea of what might happen in the future.

Jacob's Hugs Registry